They changed the circuits yesterday on the ECMO lines. This is something that has to be done periodically, and having it done for the first time at 8 days on it was very good the nurse said. The longer the better, and 8 days is pretty long. Sometimes it has to be done at 3-4 days. They need to be changed because of build up, oxygen and clotting.
There is a transition period after they are changed so the next couple of days or so will hopefully be uneventful. Then they can start testing her again for surgery. Once they get in there and can see exactly what is going on (how big the left lung is, how big the hole in the diaphragm is or if it is completely missing, etc) will give the docs a much better picture and idea of what is ahead. The nurse was explaining this to us today a little bit. A bunch of variables play into everything, so it is not necessary super bad if one comes back on the worse side if something else isn't as bad, if that makes sense. Often times one of the problems is pulmonary hypertension (I think that is what it is called), where the blood vessels around the lung shrink down and squeeze the lung, so even if it starts to get bigger the tightening of the vessels prohibits the growth. So she is on meds, Viagra to be exact, to hopefully stop this from happening. It increases blood flow to the vessels in hopes of keeping them loose....That is just a little of what the nurse talked to us about today.
I then took Coral and her mom to the grocery store and then took her mom to the train station to go back home. So now Coral is here by herself, so please pray for her. I am going to hopefully go and see her every weekend and sometimes take her somewhere to get away from the house/hospital area.
Here are the pictures from today!
Our sweet angel!
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She was awake today!
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These are just some of the machines monitoring Skye!
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Mommy!
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Grandma!
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