So, she had successful surgery on Tuesday (intestines, stomach & spleen moved back to abdomen & diaphragm patched), came off ECMO on Wednesday and had a good Thursday. On Friday they started removing the meds she was on and her body did not like the idea.
She started having a really hard time breathing and the gasses in her abdomen were not helping or contributing to it. They had the current breathing machine maxed out, but there was a different breathing machine that puts the oxygen in harder and faster. This has worked!!! So, she is currently on this new machine (not maxed out) and the meds are up again. I think they are going to try a slower approach and when she can come off this new machine, a lot more progress can be made. But, the nurse today said that she is stable and doing well. We hope to have gradually increases and if any only slight set backs, not huge up and downs, like yesterday! She is not a candidate to go back on ECMO, so let's pray that it doesn't go back that far.
I went down and spent some time with Coral and Skye. Skye was awake! We spent about an hour+ in her room, then went and got coffee at Starbucks on the first floor and then spent another 1/2 hour+ with Skye again before we both left for the double birthday party at my parents. I think Coral had a good time and appreciated all the kindness from all of you that were there. She is feeling the love!!
Here are the pictures from today; 16 days!
Look at her holding on to Mommy's finger!!
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