Slow & Steady....

Not much to report other than that they are slowly decreasing the medications and oxygen, not too fast, and she is handling it well!

We plan to visit again on Saturday!

Off Oscillator!!!

The Oscillator is the "new breathing" machine that I talked about in the last post; and she is off it and doing great!!

She's back on the ventilator, which is the "old breathing machine" that I talked about before.

It's progress; slow and steady is what we like!!!

And, Ethan is coming back this weekend for an extened length of time!!!

16 days old and best yet!!!

Skye gave us a scare yesterday, but she is stable again and as best as she has been yet!! Praise God.

So, she had successful surgery on Tuesday (intestines, stomach & spleen moved back to abdomen & diaphragm patched), came off ECMO on Wednesday and had a good Thursday.  On Friday they started removing the meds she was on and her body did not like the idea. 

She started having a really hard time breathing and the gasses in her abdomen were not helping or contributing to it.  They had the current breathing machine maxed out, but there was a different breathing machine that puts the oxygen in harder and faster.  This has worked!!!  So, she is currently on this new machine (not maxed out) and the meds are up again. I think they are going to try a slower approach and when she can come off this new machine, a lot more progress can be made.  But, the nurse today said that she is stable and doing well.  We hope to have gradually increases and if any only slight set backs, not huge up and downs, like yesterday! She is not a candidate to go back on ECMO, so let's pray that it doesn't go back that far.

I went down and spent some time with Coral and Skye.  Skye was awake!  We spent about an hour+ in her room, then went and got coffee at Starbucks on the first floor and then spent another 1/2 hour+ with Skye again before we both left for the double birthday party at my parents.  I think Coral had a good time and appreciated all the kindness from all of you that were there.  She is feeling the love!!

Here are the pictures from today; 16 days!

Look at her holding on to Mommy's finger!!

Set back

Skye has been doing really well up until mid day today.  At some point today she started having problems with her breathing.  They switched her breathing machine late this afternoon around 3:30.  Then at about 6:30pm I got a text from Coral that said she is having a really hard time with her lungs and they are trying everything they can to help her. They are worried about her.  Please pray for her! 

She said she didn't need me to come down tonight, but I told her to contact me day or night if/when she needs me, so please pray that she will do that if it ever comes to that.

Off ECMO!!!!!!!!!

That's right, Skye is off ECMO!!!!!! 

It is so exciting and such a big step.  She has been doing well since getting off it today.  The only issue is high blood pressure, which needs help, but otherwise it's going well. 

Now lets just pray that she doesn't have to go back on it!  Praise God for another good day and milestone.  :)

Surgery Day!

A successful surgery was performed today!  Surgery started about 11:30am and got done about 3pm. 

I don't know all of the details of what exactly went on during surgery, but my understanding is that the surgery was to put the out of place organs back to their correct place, like her intestines were up by her left lung.  The surgery was also to patch the hole in the diaphragm.

I'm sure we'll find out more specifics on what they found out during the next days/weeks.

Coral did say that everything looks alright and she did well during surgery.  And, she might come off ECMO tomorrow!

Praise God for a successful surgery! 

Good trial today!

The trial test they did this morning went really well so they might do surgery in the morning. 

That's all I know today!